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Living with an invisible illness can be challenging, especially when symptoms are misunderstood or dismissed. In our new series, we’ll explore invisible illnesses, starting with Postural Orthostatic Tachycardia Syndrome (POTS)—a condition that affects the autonomic nervous system and significantly impacts daily life.

This series is written by our Osteopath, Dr. Teille Wickstein, who has a particular interest in supporting individuals with complex and chronic conditions, including invisible illnesses like Postural Orthostatic Tachycardia Syndrome. Dr. Wickstein has undergone further training in “invisible illnesses” and developed a network of like-minded health professionals to provide holistic and collaborative care. This ensures patients receive comprehensive, personalised treatment for conditions such as Postural Orthostatic Tachycardia Syndrome.

What is Postural Orthostatic Tachycardia Syndrome?

POTS is a form of orthostatic intolerance. It occurs when the body struggles to adapt to changes in posture, such as standing up. This condition is characterised by an excessive increase in heart rate (30 beats per minute or more in adults) within 10 minutes of standing, without a significant drop in blood pressure. This sudden heart rate increase can lead to a range of debilitating symptoms.

POTS affects many people, particularly women, and often develops after illness, trauma, or other significant life changes. Raising awareness about this condition is essential to help individuals access the care and support they need.

Signs and Symptoms of Postural Orthostatic Tachycardia Syndrome

Symptoms of POTS can vary widely between individuals, but common complaints include:

• Fatigue and brain fog
• Dizziness and lightheadedness
• Chest pain and palpitations
• Nausea and low appetite
• Exercise and heat intolerance
• Whole-body pain, including “coat hanger” pain in the neck and shoulders
• Blood pooling in the legs, causing swelling or reddish-purple mottling
• Sleep disturbances and post-exertional malaise (PEM)

These symptoms often worsen with prolonged standing or after eating a large meal. Hormonal changes, such as those during menstruation, can also exacerbate symptoms of Postural Orthostatic Tachycardia Syndrome.

What Causes Postural Orthostatic Tachycardia Syndrome?

The exact cause of POTS is not fully understood, but certain factors can predispose individuals to the condition:

• Gender: Women are more commonly affected.
• Hormonal Influences: Oestrogen’s effect on blood volume may play a role.
• Family History: A family history of low blood pressure or autonomic conditions may increase risk.
• Underlying Conditions: Autoimmune diseases, hypermobility (e.g., Ehlers-Danlos Syndrome), or viral infections (e.g., Long COVID) are often linked to POTS.

Triggers for POTS can include physical or emotional trauma, significant illness, pregnancy, or sudden changes in activity levels.

Living with Postural Orthostatic Tachycardia Syndrome

Managing POTS requires a multi-faceted, personalised approach. Here are some strategies that can help improve quality of life:

1. Hydration and Nutrition: Staying hydrated (2–3L of water daily) and increasing salt intake (under medical guidance) can help manage symptoms. Eating smaller, more frequent meals can also reduce post-meal symptoms.
2. Compression Garments: Wearing compression stockings can prevent blood pooling in the legs, a common issue for those with Postural Orthostatic Tachycardia Syndrome.
3. Lifestyle Adjustments: Gradually increasing activity levels, avoiding prolonged standing, and pacing daily activities can help minimise symptom flare-ups.
4. Stress Management: Relaxation techniques, mindfulness, and addressing anxiety or trauma-related conditions can support overall well-being for those with Postural Orthostatic Tachycardia Syndrome.
5. Medications: In some cases, medications like beta blockers, fludrocortisone, or midodrine may be prescribed to help regulate heart rate and blood volume.

Why Awareness of Postural Orthostatic Tachycardia Syndrome Matters

One of the biggest challenges for individuals with POTS is the invisibility of their condition. Many people with this condition look healthy on the outside, yet their daily lives are disrupted by symptoms that are difficult for others to see or understand. By raising awareness about Postural Orthostatic Tachycardia Syndrome, we can foster empathy and encourage timely diagnosis and treatment.

Collaborative and Holistic Care for Postural Orthostatic Tachycardia Syndrome

At Completely Aligned, we believe in a collaborative approach to healthcare. Dr. Teille Wickstein has cultivated a network of like-minded health professionals to provide holistic care for individuals managing POTS and other invisible illnesses. This ensures that patients have access to a range of expertise and support to address their physical, emotional, and lifestyle needs.

Seeking Support for Postural Orthostatic Tachycardia Syndrome

If you suspect you or someone you know may have POTS, it’s important to seek advice from a healthcare professional. At Completely Aligned, we are here to support you with personalised care and guidance tailored to your needs.

Ready to take the next step toward better health? Call us today on (02) 4655 5588 to book an appointment. For more information, reach out to Teille and stay connected by following us on Instagram and Facebook.